Cystic fibrosis

2022 - 9 - 21

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Image courtesy of "News24"

Nine-year-old suffering with cystic fibrosis needs your help (News24)

R5 million is how much it costs for lifesaving medicine per year. But R55 000 buys my daughter one year's worth of the generic medication that will keep her ...

She has a massive sense of humour and absolutely adores her friends and family,” Kerry says. Since she was a baby – through all adversity that she has faced – she is always singing and smiling. Like diabetics who take insulin shots.” She is urging the public to share awareness around CF. I’m a single mom and cannot earn an income while we are stuck in the hospital. Surgeons will need to meet with her lung transplant surgeons to see if surgery is even possible as it may compromise her chances of receiving a double lung transplant.” The majority of CF’ers pass away in their 20’s and 30’s.

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Image courtesy of "Cystic Fibrosis News Today"

CF Patients May Respond Well to Coxsackie B Vaccine: Study (Cystic Fibrosis News Today)

Cystic fibrosis patients can get infected with Coxsackie B viruses, but results of mouse models show getting vaccinated may prevent illness.

Unvaccinated mice showed signs of damage in the pancreas, lungs, and liver, which were not found or were lower in vaccinated mice. After receiving both doses, anti-CVB3 antibody levels were similar in the CF mice compared with mice without CF. “This study shows that CVB infections are common in the CF population and we provide preclinical evidence that CVB infections are preventable through vaccination. The mice were given two injections of the vaccine, two weeks apart. “Whether CVB infections are common in CF has not been studied. On average, the CF patients were seropositive for 2.1 types of CVBs, while controls were positive for 2.8 types.

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Image courtesy of "Cystic Fibrosis News Today"

What Is Survivor's Guilt and How Do We Process It? | Cystic... (Cystic Fibrosis News Today)

The death of a classmate causes unfamiliar emotions for columnist William Ryan, prompting the question, what is survivor's guilt?

Last year, I was in the hospital for pneumonia and was being transferred to another hospital. He was planning to go to Virginia Tech and follow in his uncle’s footsteps as a sports broadcaster. He was one of the best people I knew.” [Cystic Fibrosis News Today](https://cysticfibrosisnewstoday.com/) is strictly a news and information website about the disease. At the time, the school had a senior retreat four times a year that groups of about 40 students could go on, and he and I went on the first one together that year. I’m the one who had the Our school, while not as large as a typical public high school in the city, was big for a private school. Upon learning of his death, I was incredibly saddened, yet numb from crying. We had classes together over the years and were on the school’s campus ministry team, the equivalent to a public school’s peer leadership group. When it happened, I was sitting at my computer in the living room, listening to music and doing homework. I was 18 when survivor’s guilt first appeared in my life, and it’ll probably never leave me for as long as I live. I think it’s ultimately a selfish feeling, but sometimes we all have selfish feelings we can’t shake.

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